Modeling Personal Health Information Management for the Next Decade: an Exemplary Demonstration for Cerebral Vascular Disease Patients

Economic and social development has driven the clinician-patient relationship toward partnership; 「informed consent」 becomes widely understood concepts and written into laws. A growing literature has shown that fully informed patients participating in healthcare decision making appear to have better outcomes, lower costs and higher functional status. On the other hand, the transition of global disease pattern to chronic care implies the limitation of medical care and mandates active participation by patients through appropriate diet, exercise, leisure activities, even the living environment. That is, maintaining individual health for chronic disease patients requires integration of personal health information that is distributed among various players (the patients, clinicians, health consultants, etc.) occurs in different location, time by different venues and formats. Such immense challenge can not be possibly handled by the medical professionals alone, neither by the physiologically and mentally weak patients. Therefore, incorporating information technology in establishing the dynamic relationship among the players and effectively, as well as efficiently, managing personal healthcare becomes a critical issue. The proposed research aims to model and construct a Personal Health Information Management System (PHIMS) for chronics disease patient care, taking cerebral vascular disease patients as exemplary, in the next decade. Taking genetic technologies (GENTEC), medical technologies (MEDTEC) and information & communication technologies (ICTEC) as the critical bases of modeling and constructing the PHIMS, the researchers will employ up-to-date knowledge in electronic health record, gene expression profiling, clinical decision support system, data mining, medical error detection, remote monitoring, service flow management, healthcare call center etc.. The system will help chronic disease patients in managing personal health information from perspectives of health maintenance, prevention and monitoring, diagnosis and treatment, and rehabilitation when they are alert, and facilitate healthcare providers in acquiring critical information when patients are not in full capacity of making decisions or taking actions. The constructed PHIMS expects to provide the supports and environment necessary for a chronic disease patient to actively respond to personal health needs and empower the patient with comprehensive control over one』s own health conditions, self-care techniques, and healthcare services.

Project ID:PF9706-0269
External Project ID:NSC95-2745-H182-005-HPU