A Feasibility Study of Designing a Family-Caregiver-Centred Dementia Care Handbook

Ting Ya Chang; Kevin C. Tseng

doi:10.1007/978-3-030-23563-5_34

A Feasibility Study of Designing a Family-Caregiver-Centred Dementia Care Handbook

Ting Ya Chang
, Kevin C. Tseng^*

^*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

1 Scopus citations

Abstract

This study aims to explore the feasibility of designing a family-caregiver-centred dementia care handbook. The objectives of this study were to (1) test the readability and understandability of existing written health education materials (WHEMs), (2) identify barriers to meeting dementia family caregivers’ (DFCs’) information needs in the context in which caregiving occurs, and (3) propose best-practice strategies and recommendations for redesigning WHEMs for DFCs with diverse health literacy skills. An innovative product design and development (IPDD) approach was implemented for the design and development process of the proposed WHEM for DFCs named IDEA. In-depth interviews with healthcare experts were conducted and analysed to determine their limitations and actionable recommendations for possible changes. Based on the research findings, we clarified current barriers to information experienced by DFCs and designated nine prominent themes and three essential elements to be included in thedesignprotocol. Finally, best-practice strategies and recommendations were proposed for redesigning a family-caregiver-centred dementia care handbook that may help to enhance the role of DFCs as active caregivers.

Original language	English
Title of host publication	Universal Access in Human-Computer Interaction. Multimodality and Assistive Environments - 13th International Conference, UAHCI 2019, Held as Part of the 21st HCI International Conference, HCII 2019, Proceedings
Editors	Margherita Antona, Constantine Stephanidis
Publisher	Springer Verlag
Pages	431-444
Number of pages	14
ISBN (Print)	9783030235628
DOIs	https://doi.org/10.1007/978-3-030-23563-5_34
State	Published - 2019
Externally published	Yes
Event	13th International Conference on Universal Access in Human-Computer Interaction, UAHCI 2019, held as part of the 21st International Conference on Human-Computer Interaction, HCI International 2019 - Orlando, United States Duration: 26 07 2019 → 31 07 2019

Publication series

Name	Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
Volume	11573 LNCS
ISSN (Print)	0302-9743
ISSN (Electronic)	1611-3349

Conference

Conference	13th International Conference on Universal Access in Human-Computer Interaction, UAHCI 2019, held as part of the 21st International Conference on Human-Computer Interaction, HCI International 2019
Country/Territory	United States
City	Orlando
Period	26/07/19 → 31/07/19

Bibliographical note

Publisher Copyright:
© 2019, Springer Nature Switzerland AG.

Keywords

Dementia family caregivers
Health literacy
Innovative product design and development
Written health education material

Access to Document

10.1007/978-3-030-23563-5_34

Cite this

Chang, T. Y., & Tseng, K. C. (2019). A Feasibility Study of Designing a Family-Caregiver-Centred Dementia Care Handbook. In M. Antona, & C. Stephanidis (Eds.), Universal Access in Human-Computer Interaction. Multimodality and Assistive Environments - 13th International Conference, UAHCI 2019, Held as Part of the 21st HCI International Conference, HCII 2019, Proceedings (pp. 431-444). (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); Vol. 11573 LNCS). Springer Verlag. https://doi.org/10.1007/978-3-030-23563-5_34

Chang, Ting Ya ; Tseng, Kevin C. / A Feasibility Study of Designing a Family-Caregiver-Centred Dementia Care Handbook. Universal Access in Human-Computer Interaction. Multimodality and Assistive Environments - 13th International Conference, UAHCI 2019, Held as Part of the 21st HCI International Conference, HCII 2019, Proceedings. editor / Margherita Antona ; Constantine Stephanidis. Springer Verlag, 2019. pp. 431-444 (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)).

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title = "A Feasibility Study of Designing a Family-Caregiver-Centred Dementia Care Handbook",

abstract = "This study aims to explore the feasibility of designing a family-caregiver-centred dementia care handbook. The objectives of this study were to (1) test the readability and understandability of existing written health education materials (WHEMs), (2) identify barriers to meeting dementia family caregivers{\textquoteright} (DFCs{\textquoteright}) information needs in the context in which caregiving occurs, and (3) propose best-practice strategies and recommendations for redesigning WHEMs for DFCs with diverse health literacy skills. An innovative product design and development (IPDD) approach was implemented for the design and development process of the proposed WHEM for DFCs named IDEA. In-depth interviews with healthcare experts were conducted and analysed to determine their limitations and actionable recommendations for possible changes. Based on the research findings, we clarified current barriers to information experienced by DFCs and designated nine prominent themes and three essential elements to be included in thedesignprotocol. Finally, best-practice strategies and recommendations were proposed for redesigning a family-caregiver-centred dementia care handbook that may help to enhance the role of DFCs as active caregivers.",

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Chang, TY & Tseng, KC 2019, A Feasibility Study of Designing a Family-Caregiver-Centred Dementia Care Handbook. in M Antona & C Stephanidis (eds), Universal Access in Human-Computer Interaction. Multimodality and Assistive Environments - 13th International Conference, UAHCI 2019, Held as Part of the 21st HCI International Conference, HCII 2019, Proceedings. Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics), vol. 11573 LNCS, Springer Verlag, pp. 431-444, 13th International Conference on Universal Access in Human-Computer Interaction, UAHCI 2019, held as part of the 21st International Conference on Human-Computer Interaction, HCI International 2019, Orlando, United States, 26/07/19. https://doi.org/10.1007/978-3-030-23563-5_34

A Feasibility Study of Designing a Family-Caregiver-Centred Dementia Care Handbook. / Chang, Ting Ya; Tseng, Kevin C.
Universal Access in Human-Computer Interaction. Multimodality and Assistive Environments - 13th International Conference, UAHCI 2019, Held as Part of the 21st HCI International Conference, HCII 2019, Proceedings. ed. / Margherita Antona; Constantine Stephanidis. Springer Verlag, 2019. p. 431-444 (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); Vol. 11573 LNCS).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

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AU - Chang, Ting Ya

AU - Tseng, Kevin C.

PY - 2019

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N2 - This study aims to explore the feasibility of designing a family-caregiver-centred dementia care handbook. The objectives of this study were to (1) test the readability and understandability of existing written health education materials (WHEMs), (2) identify barriers to meeting dementia family caregivers’ (DFCs’) information needs in the context in which caregiving occurs, and (3) propose best-practice strategies and recommendations for redesigning WHEMs for DFCs with diverse health literacy skills. An innovative product design and development (IPDD) approach was implemented for the design and development process of the proposed WHEM for DFCs named IDEA. In-depth interviews with healthcare experts were conducted and analysed to determine their limitations and actionable recommendations for possible changes. Based on the research findings, we clarified current barriers to information experienced by DFCs and designated nine prominent themes and three essential elements to be included in thedesignprotocol. Finally, best-practice strategies and recommendations were proposed for redesigning a family-caregiver-centred dementia care handbook that may help to enhance the role of DFCs as active caregivers.

AB - This study aims to explore the feasibility of designing a family-caregiver-centred dementia care handbook. The objectives of this study were to (1) test the readability and understandability of existing written health education materials (WHEMs), (2) identify barriers to meeting dementia family caregivers’ (DFCs’) information needs in the context in which caregiving occurs, and (3) propose best-practice strategies and recommendations for redesigning WHEMs for DFCs with diverse health literacy skills. An innovative product design and development (IPDD) approach was implemented for the design and development process of the proposed WHEM for DFCs named IDEA. In-depth interviews with healthcare experts were conducted and analysed to determine their limitations and actionable recommendations for possible changes. Based on the research findings, we clarified current barriers to information experienced by DFCs and designated nine prominent themes and three essential elements to be included in thedesignprotocol. Finally, best-practice strategies and recommendations were proposed for redesigning a family-caregiver-centred dementia care handbook that may help to enhance the role of DFCs as active caregivers.

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KW - Health literacy

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Chang TY, Tseng KC. A Feasibility Study of Designing a Family-Caregiver-Centred Dementia Care Handbook. In Antona M, Stephanidis C, editors, Universal Access in Human-Computer Interaction. Multimodality and Assistive Environments - 13th International Conference, UAHCI 2019, Held as Part of the 21st HCI International Conference, HCII 2019, Proceedings. Springer Verlag. 2019. p. 431-444. (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)). doi: 10.1007/978-3-030-23563-5_34

A Feasibility Study of Designing a Family-Caregiver-Centred Dementia Care Handbook

Abstract

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Bibliographical note

Keywords

Access to Document

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