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Development of an international glossary for clinical guidelines collaboration

  • Rachel E. Christensen
  • , Michael D. Yi
  • , Bianca Y. Kang
  • , Sarah A. Ibrahim
  • , Noor Anvery
  • , McKenzie Dirr
  • , Stephanie Adams
  • , Yasser S. Amer
  • , Alexandre Bisdorff
  • , Lisa Bradfield
  • , Steve Brown
  • , Amy Earley
  • , Lisa A. Fatheree
  • , Pierre Fayoux
  • , Thomas Getchius
  • , Pamela Ginex
  • , Amanda Graham
  • , Courtney R. Green
  • , Paolo Gresele
  • , Helen Hanson
  • Norrisa Haynes, Laszlo Hegedüs, Heba Hussein, Priya Jakhmola, Lucia Kantorova, Rathika Krishnasamy, Alex Krist, Gregory Landry, Erika D. Lease, Luis Ley, Gemma Marsden, Tim Meek, Martin Meremikwu, Carmen Moga, Saphia Mokrane, Amol Mujoomdar, Skye Newton, Norma O'Flynn, Gavin D. Perkins, Emma Jane Smith, Chatura Prematunge, Jenna Rychert, Mindy Saraco, Holger J. Schünemann, Emily Senerth, Alan Sinclair, James Shwayder, Carla Stec, Suzana Tanni, Nichole Taske, Robyn L. Temple-Smolkin, Louise Thomas, Sherene Thomas, Britt Tonnessen, Amy S. Turner, Anne Van Dam, Mitchell van Doormaal, Yung Liang Wan, Christina B. Ventura, Emma McFarlane, Rebecca L. Morgan, Toju Ogunremi, Murad Alam*
*Corresponding author for this work
  • Northwestern University
  • Guidelines International Network (GIN)
  • American Association of Clinical Endocrinology
  • King Saud University
  • Scientific Council for Health Care
  • American Society for Radiation Oncology
  • University of Sheffield
  • Kidney Disease Improving Global Outcomes (KDIGO)
  • American College of Rheumatology
  • Université de Lille
  • American Heart Association
  • Stony Brook University
  • Public Health Agency of Canada
  • The Society of Obstetricians and Gynaecologists of Canada
  • University of Perugia
  • St George's University Hospitals NHS Foundation Trust
  • University of Pennsylvania
  • University of Southern Denmark
  • Cairo University
  • Centers for Disease Control and Prevention
  • Masaryk University
  • Institute of Health Information and Statistics of the Czech Republic
  • Sunshine Coast University Hospital
  • University of Queensland
  • Virginia Commonwealth University
  • Division of Vascular Surgery
  • University of Washington
  • Hospital Ramon y Cajal
  • Healthcare Infection Society
  • Association of Anaesthetists
  • University of Calabar
  • Institute of Health Economics
  • WOREL (Werkgroep Ontwikkeling Richtlijnen Eerste Lijn) - Working Group Development of Primary Care Guidelines
  • Université libre de Bruxelles
  • University of Antwerp
  • Western University
  • Adelaide University
  • Royal College of Physicians
  • University of Warwick
  • European Association of Urology
  • University of Utah
  • American Diabetes Association
  • Humanitas University
  • Cardiovascular Angiography & Interventions
  • King's College London
  • Universidade Estadual Paulista Júlio de Mesquita Filho
  • Association for Molecular Pathology
  • Royal College of Obstetricians and Gynaecologists
  • American Academy of Sleep Medicine
  • Yale University
  • Canadian Thoracic Society
  • Royal Dutch Society for Physical Therapy (KNGF)
  • College of American Pathologists
  • National Institute for Health and Care Excellence
  • McMaster University

Research output: Contribution to journalReview articlepeer-review

9 Scopus citations

Abstract

Objectives: Clinical practice guidelines (CPGs) are often created through collaboration among organizations. The use of inconsistent terminology may cause poor communication and delays. This study aimed to develop a glossary of terms related to collaboration in guideline development. Study Design and Setting: A literature review of collaborative guidelines was performed to develop an initial list of terms related to guideline collaboration. The list of terms was presented to the members of the Guideline International Network Guidelines Collaboration Working Group, who provided presumptive definitions for each term and proposed additional terms to be included. The revised list was subsequently reviewed by an international, multidisciplinary panel of expert stakeholders. Recommendations received during this pre-Delphi review were implemented to augment an initial draft glossary. The glossary was then critically evaluated and refined through two rounds of Delphi surveys and a virtual consensus meeting with all panel members as Delphi participants. Results: Forty-nine experts participated in the pre-Delphi survey, and 44 participated in the two-round Delphi process. Consensus was reached for 37 terms and definitions. Conclusion: Uptake and utilization of this guideline collaboration glossary by key organizations and stakeholder groups may facilitate collaboration among guideline-producing organizations by improving communication, minimizing conflicts, and increasing guideline development efficiency.

Original languageEnglish
Pages (from-to)84-91
Number of pages8
JournalJournal of Clinical Epidemiology
Volume158
DOIs
StatePublished - 06 2023

Bibliographical note

Copyright © 2023 Elsevier Inc. All rights reserved.

Keywords

  • Clinical
  • Collaboration
  • Delphi
  • Development
  • Glossary
  • Guideline
  • International
  • Practice
  • Validation
  • Humans
  • Consensus
  • Delphi Technique
  • Communication

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