Parenting Stress and Related Factors in Parents of Children with Tourette Syndrome

　　本研究目的為探討妥瑞症患童父母親職壓力及其相關影響因素。為一相關性研究，採立意取樣，運用結構式問卷，以臺灣妥瑞症協會6&#8722;12足歲罹患妥瑞症患童的父母150位為研究對象。研究工具包括「親職壓力量表」及「社會支持量表」。結果顯示父母感受親職壓力標準化得分為83.5分，感到最主要的親職壓力來源是孩子難養育的行為特質。患童性別、年齡、就學情形、疾病嚴重度、父母年齡、家庭收入與親職壓力有顯著相關。社會支持程度與親職壓力呈顯著負相關(r＝&#8722;.459,p<.01)，顯示社會支持對研究對象的親職壓力有相當大的影響。複迴歸分析發現，妥瑞症患童父母對於整體親職壓力最具預測力變項為疾病嚴重度及家庭收入，兩變項可解釋42%的總變異量。當家庭收入愈低、孩童妥瑞症症狀嚴重度愈高，父母的親職壓力愈大。本研究結果可提供臨床、學校及社區的相關人員對妥瑞症孩童護理周延性之參考。
　　The objective of this study was to assess the stress of parents and its influencing factors in caring for children with Tourette syndrome. A total of 150 subjects, either fathers or mothers of children diagnosed with Tourette syndrome between the ages of 6 and 12, were recruited by purposive sampling from the membership roster of the Taiwan Tourette Family Association. Study tools included a Parenting Stress Index Form and Social Support Index Form. The standardized score for parent perception of parenting stress was 83.5. The main stressor of parents of children with Tourette syndrome was found to be child care difficulties. A correlation was found between parenting stress and child gender, age, school situation and disease severity; parent age and family income. A significant negative correlation (r = _.459, p < .01) was found between social support and parenting stress. It was revealed that social support had a significant effect on parenting stress in this study. Multiple linear regression analysis found disease severity and family income to be the variables with the greatest predictive power for parenting stress, explaining 42% of total variance. Results showed that factors affecting parenting stress included family income and disease severity. These findings should help clinical professionals develop more effective health care strategies to address the needs of children with Tourette syndrome and their parents.