Psychometric properties of the quality of life questionnaire for children with CP

Elizabeth Waters*, Elise Davis, Andrew Mackinnon, Roslyn Boyd, H. Kerr Graham, Sing Kai Lo, Rory Wolfe, Richard Stevenson, Kristie Bjornson, Eve Blair, Peter Hoare, Ulrike Ravens-sieberer, Dinah Reddihough

*Corresponding author for this work

Research output: Contribution to journalJournal Article peer-review

155 Scopus citations

Abstract

This paper describes the development and psychometric properties of a condition-specific quality of life instrument for children with cerebral palsy (CP QOL-Child). A sample of 205 primary caregivers of children with CP aged 4 to 12 years (mean 8y 5mo) and 53 children aged 9 to 12 years completed the CP QOL-Child. The children (112 males, 93 females) were sampled across Gross Motor Function Classification System (GMFCS) levels (Level I=18%, II=28%, III=14%, IV=11%, V=27%). Primary caregivers also completed other measures of child health (Child Health Questionnaire; CHQ), QOL (KIDSCREEN), and functioning (GMFCS). Internal consistency ranged from 0.74 to 0.92 for primary caregivers and from 0.80 to 0.90 for child self-report. For primary caregivers, 2-week test-retest reliability ranged from 0.76 to 0.89. The validity of the CP QOL is supported by the pattern of correlations between CP QOL-Child scales with the CHQ, KIDSCREEN, and GMFCS. Preliminary statistics suggest that the child self-report questionnaire has acceptable psychometric properties. The questionnaire can be freely accessed at http://www.deakin.edu.ac/hmnbs/chase/cerebralpalsy/cp_qol_home.php.

Original languageEnglish
Pages (from-to)49-55
Number of pages7
JournalDevelopmental Medicine and Child Neurology
Volume49
Issue number1
DOIs
StatePublished - 01 2007
Externally publishedYes

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